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Development and Initial Validation of the Quality of life Evaluation in <i>NF2</i> -related Schwannomatosis Trials (QUEST) Assessment

2026-06-18

Abstract excerpt

Individuals with NF2 -related schwannomatosis ( NF2 -SWN) experience a complex constellation of physical, emotional, and social symptoms that substantially impact quality of life (QoL). Although disease-specific patient-reported outcome measures are increasingly important for evaluating treatment benefit in clinical trials, existing NF2 -SWN QoL measures have limitations in content coverage and sensitivity to c...

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Literature Corpus work
58d75c0e-6087-537a-a963-567be6a9be07
DOI
10.64898/2026.06.09.26355287
Open publication

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Development and Initial Validation of the Quality of life Evaluation in <i>NF2</i> -related Schwannomatosis Trials (QUEST) AssessmentDOI 10.64898/2026.06.09.26355287
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