Article
A Virtual Cohort Study of Individuals at Genetic Risk for Parkinson's Disease: Study Protocol and Design.
Journal of Parkinson's disease - 1 Jan 2020
Schneider Ruth B, Myers Taylor L, Rowbotham Helen M, Luff Marie K, Amodeo Katherine, Sharma Saloni, Wilson Renee, Jensen-Roberts Stella, Auinger Peggy, McDermott Michael P, Alcalay Roy N, Biglan Kevin, Kinel Daniel, Tanner Caroline, Winter-Evans Reni, Augustine Erika F, Cannon Paul, Holloway Robert G, Dorsey E Ray
Abstract excerpt
BACKGROUND: The rise of direct-to-consumer genetic testing has enabled many to learn of their possible increased risk for rare diseases, some of which may be suitable for gene-targeted therapies. However, recruiting a large and representative population for rare diseases or genetically defined sub-populations of common diseases is slow, difficult, and expensive. OBJECTIVE: To assess the feasibility of recruiting...
Read the complete abstract on PubMedTopics
Share this publication in a Topic to start or enrich a Post.