[Biopsychosocial care concept for children with X‑chromosomal hypophosphatemia (XLH) : Example of the multiprofessional approach of social pediatric centers].

Abstract excerpt

Patients with severe, rare and complex diseases require the multiprofessional biopsychosocial care concept of a social pediatric center for chronically ill children and adolescents. The care concept is illustrated using the example of the multiorgan disease X‑chromosomal hypophosphatemic rickets (XLH), the most common congenital form of rickets.The disease is based on inactivating mutations in the...

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