Article
The Angiosarcoma Project: enabling genomic and clinical discoveries in a rare cancer through patient-partnered research.
Nature medicine - 1 Feb 2020
Painter Corrie A, Jain Esha, Tomson Brett N, Dunphy Michael, Stoddard Rachel E, Thomas Beena S, Damon Alyssa L, Shah Shahrayz, Kim Dewey, Gómez Tejeda Zañudo Jorge, Hornick Jason L, Chen Yen-Lin, Merriam Priscilla, Raut Chandrajit P, Demetri George D, Van Tine Brian A, Lander Eric S, Golub Todd R, Wagle Nikhil
Abstract excerpt
Despite rare cancers accounting for 25% of adult tumors1, they are difficult to study due to the low disease incidence and geographically dispersed patient populations, which has resulted in significant unmet clinical needs for patients with rare cancers. We assessed whether a patient-partnered research approach using online engagement can overcome these challenges, focusing on angiosarcoma, a sarcoma with an...
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