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Article

Research participants' experiences with return of genetic research results and preferences for web-based alternatives.

Molecular genetics & genomic medicine - 1 Sept 2019

Gaieski Jill B, Patrick-Miller Linda, Egleston Brian L, Maxwell Kara N, Walser Sarah, DiGiovanni Laura, Brower Jamie, Fetzer Dominique, Ganzak Amanda, McKenna Danielle, Long Jessica M, Powers Jacquelyn, Stopfer Jill E, Nathanson Katherine L, Domchek Susan M, Bradbury Angela R

Abstract excerpt

BACKGROUND: While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear. METHODS: Participants who received genetic research results answered open and closed-ended questions about their experiences receiving results and interest in and advantages and disadvantages of a web-based...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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PMID: 31376244
DOI: 10.1002/mgg3.898
PMCID: PMC6732272

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BRCA1

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