Article
Lack of consensus in ALS genetic testing practices and divergent views between ALS clinicians and patients.
Amyotrophic lateral sclerosis & frontotemporal degeneration - 1 May 2019
Klepek Holly, Nagaraja Haikady, Goutman Stephen A, Quick Adam, Kolb Stephen J, Roggenbuck Jennifer
Abstract excerpt
Recent advances in ALS gene discovery have both empowered and challenged clinicians providing evaluation and care for persons with ALS, many of whom seek an answer as to the cause of their condition. In order to study clinician practices and attitudes towards genetic testing, we surveyed members of the Northeast ALS Consortium, an international group of specialist ALS clinicians; responses were received from 80...
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