Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

Limitations and Pitfalls of Using Family Letters to Communicate Genetic Risk: a Qualitative Study with Patients and Healthcare Professionals.

Journal of genetic counseling - 1 Jun 2018

Dheensa Sandi, Lucassen Anneke, Fenwick Angela

Abstract excerpt

European genetic testing guidelines recommend that healthcare professionals (HCPs) discuss the familial implications of any test with a patient and offer written material to help them share the information with family members. Giving patients these "family letters" to alert any relatives of their risk has become part of standard practice and has gone relatively unquestioned over the years. Communication with...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Communication
Share to Family
Share to Focus Groups

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Share to Genetic Predisposition to Disease

Share to Genetic Testing

Share to Health Personnel

Share to Qualitative Research

Share to Risk Factors

Source

Open in PubMed Open full text

Identifiers

PMID: 29094272
DOI: 10.1007/s10897-017-0164-x
PMCID: PMC5943374

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 5 Sept 2026. Manifest publication-graph-cohort-2026-09-05.1.

Source receipt: pubmed, retrieved 5 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

Limitations and Pitfalls of Using Family Letters to Communicate Genetic Risk: a Qualitative Study with Patients and Healthcare Professionals.PMID 29094272Read ↗

How communication of genetic information within the family is addressed in genetic counselling: a systematic review of research evidence.Semantic proximity Read ↗

Public perspectives on healthcare professional-directed communication of hereditary genetic risks: a mixed-method systematic review.Semantic proximity Read ↗

Health professionals contacting patients' relatives directly about genetic risk (with patient consent): current clinical practice and perspectives.Semantic proximity Read ↗

The experience of receiving a letter from a cancer genetics clinic about risk for hereditary cancerSemantic proximity Read ↗

The experience of receiving a letter from a cancer genetics clinic about risk for hereditary cancer.Semantic proximity Read ↗

Patients' perspectives regarding health professionals contacting their relatives about genetic risk directly (with patient consent).Semantic proximity Read ↗

Direct notification by health professionals of relatives at-risk of genetic conditions (with patient consent): views of the Australian publicSemantic proximity Read ↗

Challenges and strategies proposed by genetic health professionals to assist with family communicationSemantic proximity Read ↗

Patients' perceptions and performance of informing relatives: A qualitative study within a trial on healthcare-assisted risk disclosure (DIRECT)Semantic proximity Read ↗

Direct letters to relatives at risk of hereditary cancer-a randomised trial on healthcare-assisted versus family-mediated risk disclosure.Semantic proximity Read ↗

Clinician perspectives on policy approaches to genetic risk disclosure in families.Semantic proximity Read ↗

Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research NetworkSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.