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Article

Important but not Enough - Information about HD Related Topics and Peer and Professional Support for Young Adults from HD Families.

Journal of Huntington's disease - 15 Dec 2016

Braisch Ulrike, Martinez-Horta Saul, MacDonald Marcy, Orth Michael

Abstract excerpt

BACKGROUND: The number of people affected by Huntington's disease (HD) is far greater than those with manifest HD because it also includes those at risk, both HD gene mutation carriers and family members not carrying the HD mutation. Many relevant needs of young adults from HD families may not be met at present. This includes advice on important life decisions e.g. family planning and having children,...

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Identifiers

PMID: 27983563
DOI: 10.3233/JHD-160218

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 5 Sept 2026. Manifest publication-graph-cohort-2026-09-05.1.

Source receipt: pubmed, retrieved 5 Sept 2026.

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