Article
Development of the HD-Teen Inventory.
Clinical nursing research - 1 May 2012
Driessnack Martha, Williams Janet K, Barnette J Jackson, Sparbel Kathleen J, Paulsen Jane S
Abstract excerpt
Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk for HD but also are witness to its onset and devastating clinical progression as their parent declines. To date, no mechanism has been developed to direct health care providers to the atypical adolescent experiences of these teens. The purpose of this report is to describe the process of developing the HD-Teen Inventory...
Read the complete abstract on PubMedTopics
Share this publication in a Topic to start or enrich a Post.
