Article
A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care.
The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association - 1 Sept 2017
Allori Alexander C, Kelley Thomas, Meara John G, Albert Asteria, Bonanthaya Krishnamurthy, Chapman Kathy, Cunningham Michael, Daskalogiannakis John, de Gier Henriette, Heggie Andrew A, Hernandez Cristina, Jackson Oksana, Jones Yin, Kangesu Loshan, Koudstaal Maarten J, Kuchhal Rajiv, Lohmander Anette, Long Ross E, Magee Leanne, Monson Laura, Rose Elizabeth, Sitzman Thomas J, Taylor Jesse A, Thorburn Guy, van Eeden Simon, Williams Chris, Wirthlin John O, Wong Karen W
Abstract excerpt
Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes-particularly those that matter most to patients and their families-and to standardize the methods by which these outcomes...
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