Article
Military Health Care Dilemmas and Genetic Discrimination: A Family's Experience with Whole Exome Sequencing.
Narrative inquiry in bioethics - 1 Jan 2015
Helm Benjamin M, Langley Katherine, Spangler Brooke B, Schrier Vergano Samantha A
Abstract excerpt
Whole-exome sequencing (WES) has increased our ability to analyze large parts of the human genome, bringing with it a plethora of ethical, legal, and social implications. A topic dominating discussion of WES is identification of "secondary findings" (SFs), defined as the identification of risk in an asymptomatic individual unrelated to the indication for the test. SFs can have considerable psychosocial impact on...
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