Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

17 Sept 2014

Abstract excerpt

BACKGROUND: Effectively educating families about the risks and benefits of genomic tests such as whole exome sequencing (WES) offers numerous challenges, including the complexity of test results and potential loss of privacy. Research on best practices for obtaining informed consent (IC) in a variety of clinical settings is needed. The BASIC3 study of clinical tumor and germline WES in an ethnically diverse...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to BRCA gene mutations in cancer
Share to Childhood Cancer Survivors' Quality of Life
Share to Ethics in Clinical Research

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Source

Identifiers

PMID: 25317207
DOI: 10.1186/s13073-014-0069-3

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 5 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patientsPMID 25317207Read ↗

Factors Associated With Declining to Participate in a Pediatric Oncology Next-Generation Sequencing StudySemantic proximity Read ↗

Stakeholders’ Opinions on the Implementation of Pediatric Whole Exome Sequencing: Implications for Informed ConsentSemantic proximity Read ↗

Informed consent for exome sequencing research in families with genetic disease: The emerging issue of incidental findingsSemantic proximity Read ↗

Policy and process for returning raw genomic data to parents and young adult participants in a pediatric cancer precision medicine trial.Semantic proximity Read ↗

The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and RecommendationsSemantic proximity Read ↗

Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid TumorsSemantic proximity Read ↗

Genomic Sequencing in Pediatric Oncology: Perspectives of Parents and Adolescents on Ethical IssuesSemantic proximity Read ↗

Parental Preferences Surrounding Timing and Content of Consent Conversations for Clinical Germline Genetic Testing Following a Child's New Cancer DiagnosisSemantic proximity Read ↗

Parents' and patients' perspectives, experiences, and preferences for germline genetic or genomic testing of children with cancer: A systematic review.Semantic proximity Read ↗

Preference for secondary findings in prenatal and pediatric exome sequencingSemantic proximity Read ↗

Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencingSemantic proximity Read ↗

Experiences with obtaining informed consent for genomic sequencingSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.