Article
Defining disability: development and validation of a mobility-Disability Severity Index (mDSI) in Charcot-Marie-tooth disease.
Journal of neurology, neurosurgery, and psychiatry - 1 Jun 2015
Ramchandren Sindhu, Shy Michael, Feldman Eva, Carlos Ruth, Siskind Carly
Abstract excerpt
OBJECTIVE: To develop and validate a reliable patient-reported scale that grades the severity of disability in Charcot-Marie-tooth disease (CMT), from an in-depth analysis of patient and healthcare provider perspectives on what mobility changes constitutes mild, moderate and severe disability. DESIGN: In this prospective, cross-sectional study, a 19-item Disability Questionnaire was developed following literature...
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