Article
QOL in caregivers of Japanese patients with Prader-Willi syndrome with reference to age and genotype.
American journal of medical genetics. Part A - 1 Sept 2014
Ihara Hiroshi, Ogata Hiroyuki, Sayama Masayuki, Kato Aya, Gito Masao, Murakami Nobuyuki, Kido Yasuhiro, Nagai Toshiro
Abstract excerpt
This study aimed to measure quality of life (QOL) of the primary family caregivers for patients with Prader-Willi syndrome (PWS). Comparisons were made between caregivers' QOL in regard to their dependents' genotype and age group. The participants with PWS consisted of 22 children (aged from 6 to 12 years) and 23 adolescents (aged from 13 to 19 years), including 6 children and 7 adolescents with maternal...
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