Article
Quality of life and psychological distress in patients with Peutz-Jeghers syndrome.
Clinical genetics - 1 Sept 2010
van Lier M G F, Mathus-Vliegen E M H, van Leerdam M E, Kuipers E J, Looman C W N, Wagner A, Vanheusden K
Abstract excerpt
Little is known about psychological distress and quality of life (QoL) in patients with Peutz-Jeghers syndrome (PJS), a rare hereditary disorder. We aimed to assess QoL and psychological distress in PJS patients compared to the general population, and to evaluate determinants of QoL and psychological distress in a cross-sectional study. PJS patients completed a questionnaire on QoL, psychological distress, and...
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