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Article

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder.

Journal of empirical research on human research ethics : JERHRE - 1 Dec 2011

Cadigan R Jean, Michie Marsha, Henderson Gail, Davis Arlene M, Beskow Laura M

Abstract excerpt

In the debate about whether to return individual genetic results to research participants, consideration of the nature of results has taken precedence over contextual factors associated with different study designs and populations. We conducted in-depth interviews with 24 individuals who participated in a genotype-driven study of cystic fibrosis: 9 of the individuals had cystic fibrosis, 15 had participated as...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 22228058
DOI: 10.1525/jer.2011.6.4.30
PMCID: PMC3386306

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