Article
Fear of health insurance loss among individuals at risk for Huntington disease.
American journal of medical genetics. Part A - 15 Aug 2008
Oster Emily, Dorsey E Ray, Bausch Jan, Shinaman Aileen, Kayson Elise, Oakes David, Shoulson Ira, Quaid Kimberly
Abstract excerpt
Genetic testing in Huntington disease, an inherited ultimately fatal neurodegenerative disorder, is infrequent despite wide availability. Factors influencing the decision to pursue testing are largely unknown. We conducted a prospective longitudinal observational study of 1,001 individuals in North America who were at risk for Huntington disease who had not pursued genetic testing prior to enrollment. We...
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