Article
Limited impact on self-concept in individuals with Lynch syndrome; results from a national cohort study.
Familial cancer - 1 Dec 2011
Petersen Helle Vendel, Esplen Mary Jane, Ladelund Steen, Bernstein Inge, Sunde Lone, Carlsson Christina, Nilbert Mef
Abstract excerpt
An increasing number of individuals seek genetic counseling and hereby learn about hereditary cancer in the family. Lynch syndrome is associated with an inherited high risk for colorectal and gynecological cancer, but knowledge about how family members at risk perceive their situation is limited. We used the national Danish HNPCC register to collect data on self-concept from 413 individuals with Lynch syndrome....
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