Article
Psychosocial consequences of predictive genetic testing for Lynch syndrome and associations to surveillance behaviour in a 7-year follow-up study.
Familial cancer - 1 Dec 2013
Aktan-Collan Katja, Kääriäinen Helena, Järvinen Heikki, Peltomäki Päivi, Pylvänäinen Kirsi, Mecklin Jukka-Pekka, Haukkala Ari
Abstract excerpt
We evaluated long-term psychosocial consequences of predictive genetic testing, and surveillance behaviour in Lynch syndrome (LS). We conducted a longitudinal study of 208 participants (62 LS mutation carriers and 146 non-carriers) who provided information on general anxiety (State-Trait Anxiety Inventory), fear of cancer and dying, satisfaction with life, risk and test perceptions, and surveillance behaviour in...
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