Article
Follow-up and quality of life of patients with cryopyrin-associated periodic syndromes treated with Anakinra.
The Journal of pediatrics - 1 Aug 2010
Lepore Loredana, Paloni Giulia, Caorsi Roberta, Alessio Maria, Rigante Donato, Ruperto Nicola, Cattalini Marco, Tommasini Alberto, Zulian Francesco, Ventura Alessando, Martini Alberto, Gattorno Marco
Abstract excerpt
OBJECTIVE: To evaluate the quality of life and long-term follow-up of patients enrolled in the Italian registry of cryopyrin-associated periodic syndromes (CAPS). STUDY DESIGN: Since 2004, 20 patients with CAPS were enrolled in a common registry from different Italian Centers of Pediatric Rheumatology; 14 patients were treated with Anakinra in an open fashion. Both treated and untreated patients were routinely...
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