Article
Personal genome research : what should the participant be told?
Trends in genetics : TIG - 1 May 2010
McGuire Amy L, Lupski James R
Abstract excerpt
Should the results of whole genome sequencing research be disclosed to participants, in particular when the results have uncertain or indeterminate phenotypic consequences? This controversial question is considered in light of one author's (J.L.) experience as a geneticist who recently had his own genome sequenced.
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