Article
Children affected by genetic conditions in end-of-life care. Part 1: Development of a study.
International journal of palliative nursing - 1 Dec 2008
Metcalfe Alison, Pumphrey Rachel, Clifford Collette
Abstract excerpt
BACKGROUND: Many children receiving hospice care are affected by inherited genetic conditions. To provide appropriate care, children's hospice nurses require knowledge and awareness of the issues faced by the child and their family along with the implications of having, or being at risk from, an...
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