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Article

End-of-life issues in genetic disorders: literature and research directions.

Genetics in medicine : official journal of the American College of Medical Genetics - 1 Jan 2000

Knebel Ann R, Hudgings Carole

Abstract excerpt

Part I of this report summarizes findings from a literature search on end of life in people with genetic disorders. There is a paucity of research on this topic; thus this article includes descriptive studies, clinical reviews, and case presentations. Part II describes the proceedings of a workshop to discuss end-of-life issues in people with genetic disorders. The workshop brought together clinicians,...

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Identifiers

PMID: 12394350
DOI: 10.1097/00125817-200209000-00008

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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