Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

Experiences of college-age youths in families with a recessive genetic condition.

Journal of family nursing - 1 May 2006

Hern Marcia J, Beery Theresa A, Barry Detrice G

Abstract excerpt

Growing up in a family with a recessive genetic condition can trigger questions about progeny effect. This study explored perceptions of family hardiness and information sharing by 18- to 21-year-olds about genetic risk. Semistructured interviews, the Family Hardiness Index (FHI), and a Family Information Sharing Analog Scale (FISAS) were used. Participants included 11 youths who had relatives with hemophilia and...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Adaptation, Psychological
Share to Emotions
Share to Family Relations

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Share to Health Education

Share to Health Knowledge, Attitudes, Practice

Share to Hemophilia A

Share to Qualitative Research

Share to Social Perception

Source

Identifiers

PMID: 16621782
DOI: 10.1177/1074840706287404

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

Experiences of college-age youths in families with a recessive genetic condition.PMID 16621782Read ↗

Kinscapes, timescapes and genescapes: families living with genetic risk.Semantic proximity Read ↗

The Theory of Genetic Vulnerability: a Roy model exemplar.Semantic proximity Read ↗

Communicating genetic risk information within families: a review.Semantic proximity Read ↗

“I need to know if I’m going to die young”: Adolescent and young adult experiences of genetic testing for Li–Fraumeni syndromeSemantic proximity Read ↗

Health-related Roles of Older Generations in Families with Inherited Genetic Conditions: A Scoping ReviewSemantic proximity Read ↗

Easing the Burden: Describing the Role of Social, Emotional and Spiritual Support in Research Families with Li‐Fraumeni SyndromeSemantic proximity Read ↗

Understanding of Inheritance and Genetic Variation Assessed through the Use of an Engaging Real-Life Survey.Semantic proximity Read ↗

Managing Uncertainty for and With Family: Communication Strategies and Motivations in Familial Uncertainty Management for Hereditary Cancer.Semantic proximity Read ↗

What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditionsSemantic proximity Read ↗

A Family-Centered Model for Sharing Genetic Risk.Semantic proximity Read ↗

"Am I my genes?": Questions of identity among individuals confronting genetic disease.Semantic proximity Read ↗

Health care professionals' views of sharing information with families who have a child with a genetic condition.Semantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.