Article
Psychological distress in the 5-year period after predictive testing for Huntington's disease.
European journal of human genetics : EJHG - 1 Jan 2003
Decruyenaere Marleen, Evers-Kiebooms Gerry, Cloostermans Trees, Boogaerts Andrea, Demyttenaere Koen, Dom René, Fryns Jean Pierre
Abstract excerpt
The paper reports on a 5-year longitudinal study on psychological distress after predictive testing for Huntington's disease (HD) and on correlates of post-test distress. Psychometric tests and questionnaires were used. The tested persons were invited to participate in the follow-up study; the uptake rate was 75% (24 carriers, 33 non-carriers). Three time points were included: baseline, 1 year and 5 years...
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