Article
[Psychosocial consequences of presymptomatic genetic testing. A retrospective study of testing for Huntington disease].
Tidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke - 20 May 1999
Jakobsen L B, Malt U, Nilsson B, Rosenlund S, Heiberg A
Abstract excerpt
We studied the psychological impact and psychosocial consequences of direct presymptomatic testing for Huntington's disease in Norway. We interviewed 30 out of a total of 43 persons at risk for Huntington's disease who had been tested one to three years earlier, and had been through the test program, and 19 of their spouses. We also included 16 persons at risk who had decided not to take the test. 22 persons were...
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