Article
Groups as gatekeepers to genomic research: conceptually confusing, morally hazardous, and practically useless.
Kennedy Institute of Ethics journal - 1 Jun 1998
Juengst Eric T
Abstract excerpt
Some argue that human groups have a stake in the outcome of population-genomics research and that the decision to participate in such research should therefore be subject to group permission. It is not possible, however, to obtain prior group permission, because the actual human groups under study, human demes, are unidentifiable before research begins. Moreover, they lack moral standing. If identifiable social...
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