Article

The de novo FAIRification process of a registry for vascular anomalies

2020-12-14

Abstract excerpt

<h4>Background</h4> Patient data registries that are FAIR - Findable, Accessible, Interoperable, and Reusable for humans and computers - facilitate research across multiple resources. This is particularly relevant to rare diseases, where data often are scarce and scattered. Specific research questions can be asked across FAIR rare disease registries and other FAIR resources without physically combining the data. <...

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Literature Corpus work: fa50529e-34fa-54e0-9b21-32668ca4851d
DOI: 10.1101/2020.12.12.20245951

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