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The Multiple Stakeholder Approach to Real-world Evidence Generation: the Results of the Jandhyala Method in Observing Expert Consensus on Quality Indicators of Rare Disease Patient Registries (RDRs) by Stakeholder Group

2020-08-06

Abstract excerpt

<h4>Background: </h4> Evidence is valuable to inform decision making. Understanding stakeholder needs from the evidence of key stakeholders is empirically important to those involved in its generation. Where multiple stakeholders exist, an understanding of whether their questions are homogenous or heterogenous necessitates a dedicated approach that will be of value to those invested in the outcomes of their decisi...

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Literature Corpus work
f88dd4ce-a40c-5d25-b8af-997ccf5a2f3d
DOI
10.21203/rs.3.rs-53391/v1
Open publication

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The Multiple Stakeholder Approach to Real-world Evidence Generation: the Results of the Jandhyala Method in Observing Expert Consensus on Quality Indicators of Rare Disease Patient Registries (RDRs) by Stakeholder GroupDOI 10.21203/rs.3.rs-53391/v1
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