Article

A tool to evaluate the impact of lived experience involvement in research: the Brain and Genomics Hub <i>Impact Log</i> protocol

2026-03-04

Abstract excerpt

<h4>Background</h4> Despite widespread recognition of the value of lived experience involvement (LEI) in healthcare research and increased LE involvement activity, we lack established implementation methods and instruments for reporting and evaluating impact. We present a protocol for an innovative LE-led Impact Log tool and LEI framework, which may help to address some fundamental barriers to LEI. The Impact L...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: c06c3425-cf20-5994-a60c-9396bcc51ba2
DOI: 10.64898/2026.03.04.26347596

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

A tool to evaluate the impact of lived experience involvement in research: the Brain and Genomics Hub <i>Impact Log</i> protocolDOI 10.64898/2026.03.04.26347596Read

Harnessing Lived Experience in Mental Health Recovery: Co-producing a Self-Directed Relapse Prevention ManualSemantic proximity Read

Patient and caregiver lived experiences and mental health service engagement during first-episode psychosis in Uganda: a longitudinal mixed-methods study protocolSemantic proximity Read

Examining Facilitators and Barriers to Diversity in Patient and Public Involvement and Engagement: A Delphi StudySemantic proximity Read

Giving Back: Return of Results Reports Using Digital Phenotyping Tools in Mental HealthSemantic proximity Read

Understanding heterogeneity and building capacity for research in long-term care and geriatric settings: a systematic qualitative review and conceptual mapping framework using mixed methodsSemantic proximity Read

Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design studySemantic proximity Read

The Certificate of Advanced Studies in Brain Health of the University of BernSemantic proximity Read

A multi-sited ethnography of patient and public involvement in epilepsy researchSemantic proximity Read

A Systematic Review & Metaethnography of the lived experiences of long COVID patientsSemantic proximity Read

Protocol for mixed-method study by LOng COvid Multidisciplinary consortium: Optimising Treatments and servIces acrOss the NHS (LOCOMOTION)Semantic proximity Read

“I can’t cope with multiple inputs”: Qualitative study of the lived experience of ‘brain fog’ after Covid-19Semantic proximity Read

Using Experience Sampling Methods to support clinical management of psychosis: The perspective of people with lived experienceSemantic proximity Read