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A Qualitative Descriptive Study Exploring Caregivers' Information Needs and Experience Caring for a Child with Chronic Heart Failure

2024-02-29

Abstract excerpt

<h4>Background: </h4> Chronic phenotypes of pediatric heart failure pose life-long burdensome symptoms for the healthcare system and families. Treatment involves complex medical therapies with few surgical options until more advanced, refractory stages. Caregivers must become proficient in providing care to these vulnerable children in the home environment, which imposes a high amount of stress. Despite caregiver...

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Literature Corpus work
bd876f48-9c41-5158-b8dc-63bc8bef3a2d
DOI
10.1101/2024.02.27.24303476
Open publication

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A Qualitative Descriptive Study Exploring Caregivers' Information Needs and Experience Caring for a Child with Chronic Heart FailureDOI 10.1101/2024.02.27.24303476
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