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Transition experiences from childhood to adulthood in individuals with Tuberous Sclerosis Complex (TSC) and the use of smartphone monitoring: A qualitative analysis of parent perspectives.

2025-03-28

Abstract excerpt

<title>Abstract</title> <p>Background Young adults with rare genetic conditions, such as Tuberous Sclerosis Complex (TSC), and their parents/caregivers can experience challenges in daily life during the transition from childhood to young adulthood. Smartphone ecological momentary assessment (smart EMA) has the potential to address limitations in standardised cross-sectional assessments as it can provide detailed...

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Literature Corpus work
abe239af-231a-501a-b645-9fca3b8305f4
DOI
10.21203/rs.3.rs-5826894/v1
Open publication

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