The personal data is political

Abstract excerpt

The success of personalized medicine does not only rely on methodological advances but also on the availability of data to learn from. While the generation and sharing of large data sets is becoming increasingly easier, there is a remarkable lack of diversity within shared datasets, rendering any novel scientific findings directly applicable only to a small portion of the human population. Here, we are investigati...

Topics

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• Data Collection
• Databases, Genetic
• BRCA gene mutations in cancer
• Disclosure
• Ethics in Clinical Research
• Genetic Variation
• Genomics and Rare Diseases
• Information Dissemination

Identifiers and source

Literature Corpus work

81a75f17-6a47-5b97-9359-7aac76647844

DOI

10.7287/peerj.preprints.27079v1