Article

Charting the Ethical Frontier in Newborn Screening: Insights from the NBSTRN ELSI Researcher Needs Survey

2024-03-19

Abstract excerpt

From 2008 to 2024, the Newborn Screening Translational Research Network (NBSTRN), part of the National Institute of Child Health and Human Development (NICHD) Hunter Kelly Newborn Screening Program, served as a robust infrastructure to facilitate groundbreaking research in newborn screening (NBS), rare disease, and genomics. Over fifteen years, NBSTRN developed into a significant international network, supporting...

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Literature Corpus work: 8053456f-df41-58d3-bad1-526aaa72192b
DOI: 10.20944/preprints202403.1068.v1

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