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The U.S. National Registry for Childhood Interstitial and Diffuse Lung Disease: Report of Study Design and Initial Enrollment Cohort

2023-03-26

Abstract excerpt

Childhood interstitial and diffuse lung disease (chILD) encompasses a broad spectrum of rare disorders. The Children’s Interstitial and Diffuse Lung Disease Research Network (chILDRN) established a prospective registry to advance knowledge regarding etiology, phenotype, natural history, and management of these disorders. This longitudinal, observational, multicenter registry utilizes single-IRB reliance agreements...

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Literature Corpus work
80272c2b-f434-57b9-93c8-7833bb0213f4
DOI
10.22541/au.167985552.21776673/v1
Open publication

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