Article

Barriers to Care in Juvenile Localized and Systemic Scleroderma: An Exploratory Survey Study of Caregivers’ Perspectives

2023-01-17

Abstract excerpt

<title>Abstract</title><p><bold>Background:</bold>Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare pediatric conditions often associated with severe morbidities. Delays in diagnosis are common, increasing the risk for permanent damage and worse outcomes. This study explored caregiver perspectives on barriers they encountered while navigating diagnosis and care for their child’s scleroderma...

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Literature Corpus work: 7a4f2802-be87-5a73-a09c-03f158104db6
DOI: 10.21203/rs.3.rs-2440691/v1

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