Article

The Heart Hive: direct-to-participant recruitment provides an effective, scalable route to identify engaged participants for cardiomyopathy research

2025-12-04

Abstract excerpt

<h4>Background</h4> Direct-to-patient platforms can overcome geographic and capacity barriers to rare-disease research, supporting inclusive and scalable recruitment. The Heart Hive was developed to enable nationwide, genomics-integrated cardiomyopathy research and rapid patient–study matching through a digital, patient-centred platform. <h4>Methods</h4> Adults self-reporting a diagnosis, or inherited risk, of c...

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Literature Corpus work: 71313330-9b22-5bbd-9131-074793914947
DOI: 10.64898/2025.12.03.25339687

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