Back to search

Article

Feasibility Study Protocol: Investigating Family Reported Outcome Measures (FROMs) in the Estimation of Societal Value of Advanced Therapy Medicinal Products (ATMPs)

2023-02-03

Abstract excerpt

<h4>Background: </h4> Advance Therapy Medicinal Products (ATMPs) are a novel class of therapeutics that target chronic and severe conditions, which can have an impact beyond the patient themselves; impacting the lives of partners and other family members. This impact is a major secondary burden of disease that in the past has often been ignored. The Family-Reported Outcome Measure (FROM-16) is the first generic qu...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work
54c8fd63-1405-5e82-aba7-89e6f1af386c
DOI
10.21203/rs.3.rs-2474459/v1
Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest
Interactive article relationship graphSelect a related publication card to move it into the centre and load its closest explainable connections. Solid lines are source-backed structured connections. Dashed lines are semantic discovery signals and are not scientific evidence.
Feasibility Study Protocol: Investigating Family Reported Outcome Measures (FROMs) in the Estimation of Societal Value of Advanced Therapy Medicinal Products (ATMPs)DOI 10.21203/rs.3.rs-2474459/v1
Feasibility Study Protocol: Investigating Family Reported Outcome Measures (FROMs) in the Estimation of Societal Value of Advanced Therapeutic Medicinal Products (ATMPs)Semantic proximity
Validation of the FROM-16 in Family Members of Patients Receiving Advanced Therapy Medicinal Product (ATMP)Semantic proximity
Incorporating the Patient Perspective into Clinician-Reported Outcome (ClinRO) Content Validation and Meaningful Within-Patient Change ThresholdsSemantic proximity
Patient demographics, medical factors, treatment modalities and satisfaction at five traditional Chinese medicine practices: A cross-sectional studySemantic proximity
Evaluating the population-based utilization and benefit of digitally collected patient-reported outcomes and experiences in patients with chronic diseases: The PROMchronic study protocolSemantic proximity
Measuring patient centeredness with German language Patient-Reported Experience Measures (PREM) – a systematic review and qualitative analysis according to COSMINSemantic proximity
Real World Evidence – Current Developments and PerspectivesSemantic proximity
Enhancing participation in the collection of patient-reported outcome and experience measures: Insights and recommendations from a mixed-methods studySemantic proximity
Assessing Side-Effect Bother, Burden, and Tolerability: A Qualitative Study Exploring the Content Validity of the Functional Assessment of Cancer Therapy – Item GP5Semantic proximity
Influence of palliative care on medication: results of a retrospective analysis of 10,464 outpatients in GermanySemantic proximity
Co-creation of the Global Patient Experience Data Navigator: A multi-stakeholder initiative to ensure the patient voice is represented in health decision-makingSemantic proximity
Generic Patient-Reported Outcomes and Outcome Measures: A Systematic Review Study ProtocolSemantic proximity
Select a neighboring publication to make it the new centre.