Article

Survey On Disclosing Information To Children With Genetic Conditions And Their Siblings In Japan

2021-11-17

Abstract excerpt

Many parents face the dilemma of when, how, and what to disclose to their children regarding their genetic conditions. The purpose of this study was to learn about the experiences of parents regarding disclosing information to their children with genetic conditions. <h4>Methods: </h4>: A questionnaire was sent to 378 parents of children and adolescents with the following genetic conditions: 22q11.2 deletion syndro...

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Literature Corpus work: 4ec7c097-15a0-57dd-81b3-6953d0ca3c01
DOI: 10.21203/rs.3.rs-1046073/v1

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