Article

The Current State of Spanish Language Resources for Patients with Rare Genetic Disease: Qualitative Expert Stakeholder Interviews

2026-04-10

Abstract excerpt

<title>Abstract</title> <p> <bold>Background:</bold> Patients with a rare genetic disease face unmet needs deepened by the traditional American healthcare system. Social, educational, and financial support resources help address some of these challenges; however, for patients who are Spanish speaking, the language barrier makes it more difficult to attain such resources. This compounds with already existing hea...

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Literature Corpus work: 2d5a8afb-52ed-5f00-8492-da5f2ffd9b40
DOI: 10.21203/rs.3.rs-9075907/v1

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