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Social functioning in Primary Ciliary Dyskinesia (PCD): a study of lived experience, relationships and support of patients and caregivers

2026-08-27

Abstract excerpt

Primary ciliary dyskinesia (PCD) is a rare, genetic, multiorgan disease requiring lifelong management. Although PCD affects everyday life, little is known about how people with PCD experience social functioning (SF). We conducted a study within the international participatory Living with PCD study to comprehensively explore SF. First, we conducted a focus group and two semi-structured interviews with adults and pa...

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Literature Corpus work
28f93b39-9820-55ad-b0fe-be594e3b24b9
DOI
10.64898/2026.08.24.26360722
Open publication

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Social functioning in Primary Ciliary Dyskinesia (PCD): a study of lived experience, relationships and support of patients and caregiversDOI 10.64898/2026.08.24.26360722
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