Development and validation of a stakeholder-driven, self-contained electronic informed consent platform for trio-based genomic research studies

Abstract excerpt

<h4>ABSTRACT</h4> Increasingly long and complex informed consents have yielded studies demonstrating comparatively low participant comprehension and satisfaction with traditional face-to-face approaches. In parallel, interest in electronic consents for clinical and research genomics has steadily increased, yet limited data are available for trio-based genomic discovery studies. We describe the design, development,...

Topics

Open a Topic to create a Post that cites this publication.

• BRCA gene mutations in cancer
• Ethics in Clinical Research
• Genomics and Rare Diseases

Identifiers and source

Literature Corpus work

1e2c0fd4-2506-5707-ac65-d096868528f0

DOI

10.1101/2024.05.01.24306461