Article

Health and the Value of Inheritance: The meanings surrounding a rare genetic disease

2015-06-01

Abstract excerpt

In this article I explore the meanings acquired by the notion of 'genetic inheritance' for families in Rio de Janeiro affected by a rare hereditary disorder, Machado-Joseph disease. My analysis examines three points: 1) how experience of the disease was thematized in the family prior to knowledge of its genetic and hereditary origin; 2) how knowledge of genetics affected the family's perception of their health and...

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Literature Corpus work: 177a42b6-93a5-563d-ab94-871ef69cefb6
DOI: 10.1590/1809-43412015v12n1p109

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