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Patient Perspectives, Unmet Needs and Dilemmas in Reproductive Decision-making for Genodermatoses: A Qualitative Interview Study.

Acta dermato-venereologica - 10 Jun 2026

Van Veen Fauve C A P, Borghouts Otte J M, Clabbers Julia M K, Steijlen Peter M, Veldman Karin, Tammer Femke, Van Geel Michel, Mosterd Klara, Van Osch Liesbeth, Heijligers Malou, Gostyński Antoni H

Abstract excerpt

Impact on quality of life due to inherited skin diseases (also known as genodermatoses) may lead to reproductive dilemmas for affected couples or individuals considering parenthood. Currently, little is known about reproductive decision-making (RDM) for those affected by or at-risk of genodermatoses. Couples/individuals' perspectives with genodermatoses were qualitatively explored by focusing on (i) the impact of...

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Cost of Illness
Decision Making
Health Knowledge, Attitudes, Practice
Health Services Needs and Demand

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Interviews as Topic

Needs Assessment

Qualitative Research

Skin Diseases, Genetic

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PMID: 42272196
DOI: 10.2340/actadv.v106.adv-2025-0278
PMCID: PMC13253761

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 31 Aug 2026.

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