Assessing quality of life in individuals with hereditary cancer risk: Results from phases 1-3a of the EORTC QLQ-HCR30 questionnaire.

doi:10.1016/j.ejca.2026.116226

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Article

Assessing quality of life in individuals with hereditary cancer risk: Results from phases 1-3a of the EORTC QLQ-HCR30 questionnaire.

European journal of cancer (Oxford, England : 1990) - 25 Feb 2026

Engele Veronika I, Vassiliou Vassilios, Wheelwright Sally, Sztankay Monika, Puglisi Chiara, Pogoda Katarzyna, van Leeuwaarde Rachel, Bleiker Eveline, Abdel-Razeq Hikmat, Fox Louis, Lanceley Anne, Dabakuyo Sandrine, Bjelic-Radisic Vesna, Nordin Andrew, Ioannidis Georgios, Kulís Dagmara, Brédart Anne, Schwaninger Gunda, Arraras Juan I, Holzner Bernhard, Oberguggenberger Anne S

Abstract excerpt

BACKGROUND: The aim of this study is to develop a European Organisation of Research and Treatment of Cancer (EORTC) patient-reported outcome measure (PROM) to assess quality of life (QOL) in individuals diagnosed with a hereditary cancer predisposition syndrome (HCPS) with or without a previous cancer diagnosis. We report on content generation, questionnaire construction, and questionnaire evaluation of...

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PMID: 41544363
DOI: 10.1016/j.ejca.2026.116226

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