Article
The burden of X-linked retinitis pigmentosa (XLRP) on patient experience and patient-reported outcomes (PROs): findings from the EXPLORE XLRP-2 study.
Eye (London, England) - 1 Feb 2025
Parmeggiani Francesco, Weber Michel, Bremond-Gignac Dominique, Daly Avril, Denee Tom, Lahaye Marjolein, Lotery Andrew, Paudel Nabin, Ritter Markus, Rodríguez de la Rúa Enrique, Rotenstreich Ygal, Sankila Eeva-Marja, Stingl Katarina, Van Denderen Jacqueline, Pungor Katalin
Abstract excerpt
BACKGROUND/AIMS: X-linked retinitis pigmentosa (XLRP) is considered one of the most severe forms of retinitis pigmentosa (RP), accounting for 5-15% of all RP cases and primarily affecting males. However, the real-world humanistic impacts of this disease on patients are poorly investigated, especially with respect to burdens faced by patients with varying disease severities. METHODS: EXPLORE XLRP-2 was an...
Read the complete abstract on PubMedTopics
Share this publication in a Topic to start or enrich a Post.