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Article

Qualitative Interviews to Better Understand the Patient Experience and Evaluate Patient-Reported Outcomes (PRO) in RLBP1 Retinitis Pigmentosa (RLBP1 RP).

Advances in therapy - 1 Jun 2020

Green Jane, Tolley Chloe, Bentley Sarah, Arbuckle Rob, Burstedt Marie, Whelan James, Holopigian Karen, Stasi Kali, Sloesen Brigitte, Spera Claudio, Deslandes Jean-Yves, Mullins Anmol

Abstract excerpt

INTRODUCTION: RLBP1 RP is an autosomal recessive form of retinitis pigmentosa (RP), characterized by night blindness, prolonged dark adaptation, constricted visual fields and impaired macular function. This study aimed to better understand the patient experience of RLBP1 RP and evaluate the content validity of existing patient reported outcome (PRO) instruments in this condition. METHODS: Semi-structured concept...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 32372289
DOI: 10.1007/s12325-020-01275-4
PMCID: PMC7467452

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