Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of care

Abstract excerpt

Background: A growing population of youth with medical complexity (YMC) are entering adult health care, education, and social systems in which their needs have been largely neglected. To better support YMC and their families, an understanding of how they manage the challenges of transitioning to adult services is needed. The aim of this study was to examine how families of YMC adapt to challenges and...

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