Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

Adolescents' Transition to Self-Management of a Chronic Genetic Disorder

19 Mar 2008

Abstract excerpt

Self-management of chronic illness requires acquisition of self-care skills such as seeking knowledge, adhering to recommendations, practicing healthy behaviors, and life-long self-surveillance. This article describes the core problem and psychosocial processes by which parents transfer, and children take on, the responsibility for managing a chronic genetic condition. Individuals with Marfan syndrome (MFS),...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Adolescent and Pediatric Healthcare
Share to Child Nutrition and Feeding Issues
Share to Family and Disability Support Research

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Source

Identifiers

PMID: 18354044
DOI: 10.1177/1049732308314853

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 6 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

Adolescents' Transition to Self-Management of a Chronic Genetic DisorderPMID 18354044Read ↗

Self-surveillance by adolescents and young adults transitioning to self-management of a chronic genetic disorder.Semantic proximity Read ↗

Experience with genetic counseling: the adolescent perspectiveSemantic proximity Read ↗

Experiencing the Genetic Body: Parents' Encounters with Pediatric Clinical GeneticsSemantic proximity Read ↗

A Systematized review of experiences of individuals in Arnett's emerging adulthood stage who live with or are at-risk for genetic conditions.Semantic proximity Read ↗

Coming Full Circle: A Reciprocal‐Engagement Model of Genetic Counseling PracticeSemantic proximity Read ↗

“<i>Did you find that out in time</i>?”: New life trajectories of parents who choose to continue a pregnancy where a genetic disorder is diagnosed or likelySemantic proximity Read ↗

Influence of genetic risk information on parental role identity in adolescent girls and young women from families with fragile X syndrome.Semantic proximity Read ↗

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial IssuesSemantic proximity Read ↗

The Impact of Living with Klinefelter Syndrome: A Qualitative Exploration of Adolescents and AdultsSemantic proximity Read ↗

Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult CareSemantic proximity Read ↗

Surviving transition: A qualitative case study on how families adapt as their youth with medical complexity transitions from child to adult systems of careSemantic proximity Read ↗

Transition and transfer of adolescents and young adults with pediatric onset chronic disease: The patient and parent perspectiveSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.