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Secondary use of genomic data: patients’ decisions at point of testing and perspectives to inform international data sharing

25 Mar 2024

Abstract excerpt

International sharing of genomic data files arising from clinical testing of patients is essential to further improve genomic medicine. Whilst the general public are reluctant to donate DNA for research, the choices patients actually make about sharing their clinical genomic data for future re-use (research or clinical) are unknown. We ascertained the data-sharing choices of 1515 patients having genomic testing...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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PMID: 38528053
DOI: 10.1038/s41431-023-01531-5

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